Support for KIDS & AYA with cancer
NPO SuperNils is a supportive patient organisation for children, adolescents and young adults with (haematological) cancer. We collaborate with several other organisations, to give your mental well-being a real boost. Do not hesitate to contact us!
The brain of the organisation. This is where decisions are made, where operations and objectives are considered. At least 50% of its members are "neighbours".
Group of entrepreneurs who spread vzw SuperNils within their own network, provide advice around its operation and help look for new investors.
Meeting at which members are informed about the organisation's operations, plans, objectives and financial policies. Of course, they can also contribute new ideas and have a voice in taking important decisions.
Changing groups of people think about new projects, interactive packages or activities. They are often relatives who are part of these teams.
Asbl SuperNils aims to be a professional patient organisation recognised within the world of healthcare, hospitals, universities and other patient associations.
To achieve this, you need a clear structure and people who are fully 100% committed to the organisation.
Therefore, the Board of Directors consists of eight people, including 50% relatives, who meet this condition. It is these people who are permanently thinking about operations, new plans, optimisations and projects. They are the brains of vzw SuperNils!
The Board of Directors is assisted by a professional accountant.
Accounting firm Gyselinck & Co BV
Clement D'hooghelaan 38, G - 9140 Temse
Vzw SuperNils wants to grow so that it can work with more hospitals (ambition = by 2030 all reference hospitals for AYAs and specialised child cancer hospitals in Belgium, recognised by the government) and thus support more patients from the target group.
However, we cannot achieve this mission without additional resources. The current operating budget will have to grow. And this is precisely why we set up the "Heart and Mind" support team. The group consists of entrepreneurs who care about SuperNils and make the organisation more widely known within their own networks.
"Heart and Mind" is thinking about developing sponsorship packages, which can then be proposed to companies.
Members of the support team propose possible candidate companies to the Board of Directors.
It is planned to expand this team in the future.
Venar VR company
Once a calendar year, non-profit association SuperNils organises a General Members' Meeting. There, the effective members get an insight into the past year's operations, the realised projects and the annual accounts. The new business plan for the coming year is presented, including the prepared budget, new projects and project applications, new partners and insights. Members have the opportunity to ask additional questions for clarification. Finally, they discharge the directors for their work over the past year.
Who are the members of our organisation?
People who make a donation of 40 euros or more and indicate that they want to become members of SuperNils asbl free of charge will receive a membership card for the current calendar year. This card grants them access to the general assembly of members and thus also gives them a say in the operation and objectives. These working members also get full access to the website, via a dedicated login.
An organisation like non-profit association SuperNils cannot do without project teams. They work on various projects, draw up project applications or deal with marketing, communication and events.
The teams are managed by a project leader, such as myself. The project leader puts together his/her own team of volunteers who are happy to contribute.
The organisation was founded on 6 November 2018, more than two years after Nils' death. It is this young man's ideas that we put into practice.
SuperNils focuses mainly on children, adolescents and young adults with (haematological) cancer. Currently, we do in 8 hospitals, spread throughout Flanders and the Brussels-Capital Region. However, our ambition is to extend this to all reference hospitals for AYAs and the specialised paediatric cancer hospitals in Belgium, recognised by the government, by 2030. This offer will be expanded to include the hospitals we already support and will not drop (AZ Klina, AZ Jessa, AZ Delta, UZ Brussel and ZAS Cadix). So big ambitions!
The organisation boosts the mental well-being of all these patients, through interactive boxes that will be permanently available in partner hospitals. Furthermore, through two university "SuperNils" funds, we support scientific research into leukaemia. And finally, we inform our patients and any other interested party, through the website, a podcast (Leukaemia, SuperNils Boostfactory), webinars, discussion groups for patients' relatives and through our VR project.
We do all this now with a limited annual budget of around €100 000 (in 2024). To achieve our ambitions, this will certainly have to be doubled. So sponsorship from companies, donations from individuals and project funds from organisations such as Foundation Against Cancer, Kom op tegen Kanker, the King Baudouin Foundation and The Warmest Week remain very important! But possible funding from the Government could also help us further. We will inform ourselves on this in 2025.
Want to find out more about our ambassador, Peter Genyn? Then quickly click on the picture below.
Photo credits: Geert de Rycke
Connected to our association? Then respect this framework of values.
SuperNils is an organisation with integrity. We want to be transparent in what we do; we never work with a hidden agenda. We are honest, trustworthy and correct to everyone.
SuperNils loves diversity in the broadest sense of the word! Everyone is welcome in our organisation, regardless of nationality, origin, gender, religion, sex ... When supporting, no one will ever be excluded.
Asbl SuperNils wants to act professionally. Therefore, we will always enlist the help of people who are properly trained so that we do not make mistakes and never endanger patients with our actions. To make our organisation work smoothly and correctly, we will seek advice from external people, who can look at operations with an open mind.
Things are not going well for our planet. Asbl SuperNils would like to help reverse the current trend. That is why we mainly choose sustainable materials to compose our interactive boxes. Furthermore, we dream of a real SuperNils forest, somewhere in Flanders. The first steps for this have already been taken.
Asbl SuperNils is a networking organisation. All alone, we put ourselves in a weak position, but within a well-designed network the organisation gains mental and physical muscle. So our job is to permanently look for the right partner. Partners can be companies, organisations and individuals who want to invest financially in our operation. Donations are also tax-deductible from 2023! But we are also looking for partners who want to cooperate with us and help think about new projects.
We would now like to take you on a discovery within our wide and valuable network ...
How proud I am of our organisation! Asbl SuperNils has grown from a small, unknown player to a fine organisation with name recognition within the healthcare sector. Being able to support patients with onco-haematological disease is what we all do this for. It was our youngest son's wish ... which we are fulfilling!
How a terrible loss can turn into a beautiful and warm story. We miss Nils more and more, but we know he is proud of what we do!